Tool in cancer fight or new wrinkle in the ‘underworld of data mining’ - The Boston Globe
The letter highlights critical ethical concerns regarding TriNetX’s massive database of de-identified medical records, questioning data ownership and patient consent. It challenges the transparency of healthcare organizations sharing this information and the lack of opt-out mechanisms for individuals. This matters to open data by exposing the tension between public health innovation and individual privacy rights in large-scale medical research.
Source: bostonglobe.comPublished on 2024-02-07